Anyone feeling magnanimous?

Jun 11, 2021 1:26 AM

POWDERDAZE

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See this pic? It's a healthy human Kidney. Most human beings have two of them. Some are born with only one and live a perfectly normal life.

6 years ago I went to my rheumatologist for lab work. (I'm on biologics because I'm blessed with A.S.) The lab tech saw some numbers in my blood count that was "rather alarming".....

It was a regular day. Felt fine as usual. Appointment went well as expected. On my way home I got the call from the doctor to IMMEDIATELY go to the closest ER. I told them where I was going and when I pulled into the hospital parking lot, The ER team was waiting with a wheel chair and an ambulance. April 10th, 2016...

Stage 5 renal failure. Left kidney 13% function. Right kidney 0 function.

The last day I felt like I was a human being.

I'm on dialysis. The usual 3 days 4 hours per. Cannot function after treatment.
Now CIGNA refuses to pay for renal consult from the doctors ($650 per visit)
$5000 annual co-pay for treatment
covers 15% of weekly lab work
refuses to cover any preventative care like, x-rays, mri, ct scans, thyroid tests, med checks, etc...

SOOOO.....

Anyone out in the imgur world have type o positive blood and not using one of their kidneys? If you're not compatible blood type, You could still donate.

Message me for more details if you think you're up to it. I've made the decision to stop dialysis by the end of summer. I've been on the transplant list since day one. And looking at another 10 years or more of dialysis before I receive a transplant-

I’m O+ what part of the country are you in?

5 years ago | Likes 18 Dislikes 0

@OP is in Massachusetts

5 years ago | Likes 3 Dislikes 0

Just curious if you are on peritoneal dialysis or a machine? My uncle lived a very full life for many years on peritoneal dialysis.

5 years ago | Likes 6 Dislikes 0

Sounds like they do the other kind based on the scheduling they mentioned. Peritoneal seems easier on the body and on scheduling

5 years ago | Likes 2 Dislikes 0

Peritoneal is all done at home by yourself. No need to go to a clinic.

5 years ago | Likes 2 Dislikes 0

I'm a T1 diabetic, my kidneys are kinda busy.

5 years ago | Likes 15 Dislikes 0

I'd donate one of mine, but I don't think a kidney full of staghorn stones is considered "desirable", for transplantation. I CAN help with

5 years ago | Likes 71 Dislikes 0

your insurer, though. PM me and I'll see if I can't at least get your consult paid.

5 years ago | Likes 46 Dislikes 0

@op

5 years ago | Likes 4 Dislikes 0

If you have a relative or friend that is willing to donate, but not a match, there are cross donation programs available.

5 years ago | Likes 521 Dislikes 0

I didn’t know this. As a person born with one kidney I hope I never need this but if I do this just opened up way more possibilities.

5 years ago | Likes 3 Dislikes 0

My friend is involved in one. She is getting a kidney in about a month and her mom is donating one to another person. Pretty cool.

5 years ago | Likes 96 Dislikes 0

Very cool stuff

5 years ago | Likes 4 Dislikes 0

I’m in partial remission for stage two membranous nephropathy. Upvote for awareness. Living donors are fucking heroic. Good luck to you, @op

5 years ago | Likes 24 Dislikes 0

Are you not able to get SSDI MEDICARE MEDICAD? Renal failure is covered under SSDI. Please look into that. Talk with a social worker.

5 years ago | Likes 23 Dislikes 0

:( USA I assume?

5 years ago | Likes 12 Dislikes 0

Sorry dude I've only had 1 since I was 3 weeks old, so it's busy atm. Hope you're able to find a donor

5 years ago | Likes 387 Dislikes 1

You guys should take turns

5 years ago | Likes 115 Dislikes 0

"Hey, mom said it's my turn with the kidney!"

5 years ago | Likes 49 Dislikes 0

A friend was born with one, but it's massive

5 years ago | Likes 8 Dislikes 0

5 years ago | Likes 13 Dislikes 0

If it were me, id give it. Not because its generous, i just would rather not exist :D

5 years ago | Likes 3 Dislikes 0

Have you heard of John Carter?

5 years ago | Likes 1 Dislikes 0

Oh damn.

5 years ago | Likes 2 Dislikes 0

I'm o positive. I don't have messaging capabilities, never post, comment rarely. Uuuhhh gimme deets.

5 years ago | Likes 86 Dislikes 1

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5 years ago (deleted Oct 21, 2024 11:40 PM) | Likes 0 Dislikes 0

Thanks! Just did it.

5 years ago | Likes 2 Dislikes 0

I don't have the vacation or sick time and I'm not eligible for FMLA until 3/9/22. But I'm saving your post.

5 years ago | Likes 10 Dislikes 0

Ankylosing spondylitis? Did it affect your kidneys prior to the renal failure? Do the Drs know why your kidneys all of a sudden crapped out?

5 years ago | Likes 9 Dislikes 0

Can you take O neg?

5 years ago | Likes 57 Dislikes 0

Compatibility matching for organs is more complicated than for blood donations. A blood type match is a useful indicator, but not absolute.

5 years ago | Likes 3 Dislikes 0

But if somebody of any blood type can donate a kidney on OP's behalf, there are programs to match/swap with a donor who has a kidney with 2/

5 years ago | Likes 3 Dislikes 0

...the right immune spectrum match for OP.

5 years ago | Likes 2 Dislikes 0

I would argue that that picture does not show a healthy kidney, as it is not attached to a human body. Anyway, sadly I am not your type

5 years ago | Likes 20 Dislikes 3

OP can find someone who also has an un-matching donor, and you would swap donors, thus both getting a matching blood type kidney. Go for it!

5 years ago | Likes 1 Dislikes 0

That's way too much math for me

5 years ago | Likes 1 Dislikes 0

Upvote for awareness @OP I’m the wrong blood type

5 years ago | Likes 310 Dislikes 3

I'd love to donate either of mine (one, not both), but after they both ended up a/ some substantial damage, dono is out of the question.

5 years ago | Likes 5 Dislikes 0

No pressure, but if you are interested: https://www.kidney.org/transplantation/livingdonors/incompatiblebloodtype

5 years ago | Likes 23 Dislikes 0

On dialysis myself right now, it sucks and I'm sorry. But you definitely qualify for Medicare and SSD. Don't give up yet. 1/2.

5 years ago | Likes 28 Dislikes 0

Even with transplant, depending on your age, you'll be back on dialysis again. While they can last longer transplant average about 10 years.

5 years ago | Likes 11 Dislikes 0

@OP see above

5 years ago | Likes 1 Dislikes 0

Well thats fucking depressing

5 years ago | Likes 7 Dislikes 0

I've had a kidney transplant, I know how you are feeling. Fortunately I am in Canada so everything was covered. If you need to talk, send/1

5 years ago | Likes 12 Dislikes 1

Me a DM. My situation was different but moral support is always welcome.

5 years ago | Likes 6 Dislikes 0

You qualify for Medicare after the first 30 days of dialysis. Medicare pays 100% for dialysis. Please reach out to the social worker 1/

5 years ago | Likes 300 Dislikes 2

Link to Medicare’s web site dealing with renal failure: https://www.medicare.gov/manage-your-health/i-have-end-stage-renal-disease-esrd

5 years ago | Likes 1 Dislikes 0

So much this. It’s retroactive as well. If you have paid bills for dialysis, there’s a good chance you can get refunded.

5 years ago | Likes 75 Dislikes 0

This OP, same with Medicaid in some states like indiana. 100% paid for no bills.

5 years ago | Likes 14 Dislikes 0

@OP This and call a disability attorney and look up your local SSN office. Nixon put the whole system in place for renal failure people.

5 years ago | Likes 3 Dislikes 0

I confirm this. And the payments are retroactive. google.com/search?q=how+apply+for+SSDI

5 years ago | Likes 3 Dislikes 0

if you are at a private clinic (Davita, Fresenius...),or ask the hospital to hook you up with a dialysis insurance specialist. 2/

5 years ago | Likes 146 Dislikes 0

If you want more info or to commiserate, DM me, I am a kidney recipient and my wife used to be a dialysis tech.

5 years ago | Likes 95 Dislikes 0

Is that how you met?

5 years ago | Likes 4 Dislikes 0

ALL OF THIS. Former nursing home admin here, this is correct. Get in touch with a social worker. You have help, just have to ask for it

5 years ago | Likes 55 Dislikes 0

It pays for most of the dialysis. And doesn't cover other crap like the doctor. I've been on dialysis for six years

5 years ago | Likes 7 Dislikes 0

Part B covers doctors. Those with ESRD should have pretty much 100% coverage unless enrolled in managed care.

5 years ago | Likes 7 Dislikes 0

I just had a question. When do my kidneys fall out and my adultneys come in? For real though, I hope your info helps someone in need.

5 years ago | Likes 24 Dislikes 1

*facepalm*

5 years ago | Likes 4 Dislikes 0

I am gifting this gem to my hubby for his 'dad joke' repertoire. I thank you on his behalf!

5 years ago | Likes 6 Dislikes 0

O+ who can’t figure out messages- pm me?

5 years ago | Likes 6 Dislikes 0

Just messaged you @OP with my phone number. I am O+ and have two perfectly healthy kidneys. Get at me bro.

5 years ago | Likes 36 Dislikes 0

God bless you both!

5 years ago | Likes 1 Dislikes 0

Hey I gave 1 of mine away in 2017... no problems...it was pretty easy, go for it!

5 years ago | Likes 2 Dislikes 0

WoW! You are another angel’

5 years ago | Likes 1 Dislikes 0

As someone who is also currently on dialysis, good shit my fellow human!!! We are born with 2 and only need 1 to function! Thank you!!!

5 years ago | Likes 2 Dislikes 0

Dude, you are a hero even for offering. I’m humbled.

5 years ago | Likes 9 Dislikes 0

Me too! He’s an angel!

5 years ago | Likes 1 Dislikes 0

Not like I'm using both of them lol. The Gods gave me two, and if Tyr can get by with one hand, I can spare a kidney.

5 years ago | Likes 5 Dislikes 0

We really need lab grown organs for things like this

5 years ago | Likes 40 Dislikes 0

Or "washing out" any donated organs, grafting host stem cells into the cell matrices to grow an identical "replica" (a current project)

5 years ago | Likes 2 Dislikes 0

Sadly the amount of available organs is far more than it seems. Its due to mismanagement (lost organs, failed storage etc) that the wait is

5 years ago | Likes 10 Dislikes 0

So awful

5 years ago | Likes 8 Dislikes 0

They are working on this, but will be way too late for people in trouble now.

5 years ago | Likes 4 Dislikes 0

This country is simply broken.

5 years ago | Likes 589 Dislikes 12

Difficulties in finding organ donors is not just an American issue

5 years ago | Likes 2 Dislikes 1

Yeah, do the right thing and get insurance, then when you need them they refuse to pay out... for common medical needs.

5 years ago | Likes 2 Dislikes 0

As a Canadian, I just don’t get this. I actually can’t grasp being denied life saving treatment over money. Fucking disgraceful.

5 years ago | Likes 108 Dislikes 4

Same here, as a Brit it blows my mind. Medical treatment regardless of how minor or serious is all free at the point of use here also.

5 years ago | Likes 3 Dislikes 0

Saw a post here about broken femur surgery being like 500k. Had the same surgery 2 months ago in Canada. Was $350.. for the airlift plane.

5 years ago | Likes 15 Dislikes 0

5 years ago | Likes 4 Dislikes 0

The fact that the donor program is an opt in system and not an opt out system is all you need to know about human society.

5 years ago | Likes 32 Dislikes 3

Yes, when someone dies, they should be considered an organ donor, immediately. Obviously there's a real risk of shady organ farms, but....

5 years ago | Likes 5 Dislikes 1

Agreed. UK changed to opt out just a few years ago. Massive difference.

5 years ago | Likes 12 Dislikes 1

Actually dialysis is 100% covered by Medicare in the US, this person is either unaware or is purposely omitting it.

5 years ago | Likes 13 Dislikes 1

Truth. Its not just for 65 and older. Renal failure qualifies you

5 years ago | Likes 3 Dislikes 0

@OP

5 years ago | Likes 3 Dislikes 0

Half the country thinks other people don't deserve healthcare. It's disgusting...

5 years ago | Likes 177 Dislikes 3

Especially when they feel entitled to social security and medicare

5 years ago | Likes 1 Dislikes 0

When will the sane part really become tired of the republican bullshit? The gop is basically killing people

5 years ago | Likes 5 Dislikes 2

Not "other people" is the weird part. They think nobody - including themselves! - should be able to afford healthcare.

5 years ago | Likes 54 Dislikes 0

Their thought processes go "I'm not sick, so I don't need it anyway." They at no point plan on becoming sick. Naturally, when they get sick,

5 years ago | Likes 9 Dislikes 0

they will ask for help paying their bills, because they don't see their own hypocrisy.

5 years ago | Likes 9 Dislikes 0

Nah. They will be billionaires any day now, they're sure of it. They've been tugging at their bootstraps for like a week.

5 years ago | Likes 39 Dislikes 0

I agree, but I also think if would be just as hard to acquire a healthy kidney in another country.

5 years ago | Likes 9 Dislikes 3

This, I'm in kinda the same boat as op. The wait list is usually about 10 years unless you can find someone that's compatible.

5 years ago | Likes 3 Dislikes 0

That may certainly be true, but in the meantime other countries wouldn’t refuse to pay for treatment or scans.

5 years ago | Likes 14 Dislikes 0

Hear me out! What if there would be universal healthcare and nobody had worry about life ruining medical bills?

5 years ago | Likes 6 Dislikes 0

Well, then the U. S. Would actually, honestly be a humane, civilized nation - and to Hell with the greedy drug and insurance companies.

5 years ago | Likes 1 Dislikes 0

What exactly can I do to help with A+ blood?

5 years ago | Likes 16 Dislikes 0

Donate blood if you qualify. I just donated blood and felt good about it the next day and still feel like I did something to help someone

5 years ago | Likes 19 Dislikes 0

If I could I would, but I pass out even if they take just 1 vial for bloodworks

5 years ago | Likes 4 Dislikes 0

Sorry OP, Different blood type but Upvote for awareness to others

5 years ago | Likes 6 Dislikes 0

Make sure to look at the Hospital's financial assistance program if they have one you can get steep discounts depending on how much you make

5 years ago | Likes 1127 Dislikes 0

I know several people who started working shit jobs so they could qualify for such programs.

5 years ago | Likes 30 Dislikes 0

That is so sad and fucked up.

5 years ago | Likes 8 Dislikes 0

Call a lawyer

5 years ago | Likes 2 Dislikes 0

Almost as steep as what they give insurance companies discounts on.

5 years ago | Likes 2 Dislikes 0

Yeah but €650 for a renal consult is CRAZY!!

5 years ago | Likes 1 Dislikes 0

Renal failure also guarantees Social Security Disability and Medicare if dialysis dependent.

5 years ago | Likes 176 Dislikes 0

Medicare/Medicaid often times requires you to have 0 assets. They’ll make you sell off your house before paying out. Shits whack

5 years ago | Likes 2 Dislikes 0

Not usually if you have kidney issues. We can get of get a pass.

5 years ago | Likes 3 Dislikes 0

Oh really? I don’t know it was different for kidney issues. My dad had a stroke and Medicare wouldn’t help unless he sold his house

5 years ago | Likes 3 Dislikes 0

It's shitty how they do people but yeah. Own my home and 2 cars, have SSID and Medicare and got them on my 1st try since I'm on dialysis

5 years ago | Likes 2 Dislikes 0

This. @op I worked for social security disability determination in my state, DM me with any questions about applying.

5 years ago | Likes 78 Dislikes 0

.

5 years ago | Likes 2 Dislikes 0

My mom had to apply 3 times (3rd with a lawyer) to get accepted even tho you can tell she can't work ?

5 years ago | Likes 25 Dislikes 1

It's hard, sometimes people are right on the border line, hard to to into in 140 characters or less.

5 years ago | Likes 1 Dislikes 0

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5 years ago (deleted Oct 21, 2024 11:40 PM) | Likes 0 Dislikes 0

Came to repost this link. Wife has PKD and already has over 5K in debt and she grew up poor on "free" gov healthcare.

5 years ago | Likes 2 Dislikes 0

@op

5 years ago | Likes 3 Dislikes 0

oh damn that's good to know

5 years ago | Likes 3 Dislikes 0

Damn, I checked it out and I BARELY make above the limit, so I’m screwed if I need to be hospitalized.

5 years ago | Likes 40 Dislikes 0

They can and will work with you to solve that problem. Most hospital workers don’t like our insurance system either.

5 years ago | Likes 1 Dislikes 0

Ask for a paycut

5 years ago | Likes 15 Dislikes 0

This. Or ask for a pay cut temporarily and for your pay to be deferred under after your treatment?

5 years ago | Likes 7 Dislikes 0

That sounds like fraud

5 years ago | Likes 5 Dislikes 0

Yeah buddy! You and me, friend. Made $800 too much to qualify for university financial aid - I didn’t go, couldn’t afford the debt #blessed

5 years ago | Likes 9 Dislikes 0

If you look at the chart they will still forgive a large chunk of the bill unless you are fairly wealthy.

5 years ago | Likes 4 Dislikes 0

Wanna be treated like a human being and learn a New language ? Come live to France! We're waiting !

5 years ago | Likes 6 Dislikes 0

How hard is it for folks with serious chronic health issues to immigrate?

5 years ago | Likes 1 Dislikes 0

Very. Especially someone on Dialysis. They really can't miss those apts. One Dr I was going to partner for research basically wanted to (1/

5 years ago | Likes 2 Dislikes 0

Institute a policy that No Shows would receive a wellness check from Police. He wasn't playing. (2/2)

5 years ago | Likes 3 Dislikes 0

I literally know nobody with type O blood or I would totally donate one for you.

5 years ago | Likes 22 Dislikes 2

…this makes it sound like if you knew someone with that blood type you would kill them and give their kidneys to op…?

5 years ago | Likes 31 Dislikes 0

That's the point.

5 years ago | Likes 17 Dislikes 1

They don't call him Stabby McMurder for nothing.

5 years ago | Likes 34 Dislikes 0

Let’s start an Imgur black ops squad to “borrow” kidneys from people who stormed the capital on 1/6.

5 years ago | Likes 67 Dislikes 10

I’m in. Getting my 2nd shot on Saturday so give me 2 weeks before I can go road tripping.

5 years ago | Likes 4 Dislikes 1

Or the people who lied and brainwashed them into believing they were being Patriots.

5 years ago | Likes 28 Dislikes 1

How about we borrow a few hundred organs from the people who make this the level of "healthcare" in america?

5 years ago | Likes 24 Dislikes 1

Ok I officially retract & regret this comment. We should never joke about violence in today’s world. No one wants a traitor’s kidney anyways

5 years ago | Likes 12 Dislikes 2

alright, thank you

5 years ago | Likes 5 Dislikes 1

Hey,I'm all for rewarding/reducing prison sentences for donation of human organs. A 10 yr sentence cut in half for saving a life by donating

5 years ago | Likes 5 Dislikes 0

Hang in there @OP. I’ve been on dialysis before and am getting ready for my 3rd transplant. If you want somebody to chat at, hmu.

5 years ago | Likes 45 Dislikes 0

3rd?!?! I can't even get one :(

5 years ago | Likes 7 Dislikes 0

Sorry hear that… I’ve lived with kidney issues my whole life and despite some issues for each one I’ve been fortunate.

5 years ago | Likes 10 Dislikes 1

sorry to tell you this. my research on kidney transplants came up with the fact that kidney transplants usually only last 10 ish years.

5 years ago | Likes 6 Dislikes 0

It sucks balls we can’t clone one as routine yet.

5 years ago | Likes 4 Dislikes 0

i have a kidney disease and im heading for dialysys within a year or two. so

5 years ago | Likes 7 Dislikes 0

Oh I know that. But that's 10years that I don't have to give up 15 hours with my kids every week.

5 years ago | Likes 6 Dislikes 0

Had mine for 30 years

5 years ago | Likes 5 Dislikes 0