I don't know of you remember me, but...

Sep 20, 2018 11:02 PM

Jerainne

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Back in March, I had posted a picture of my picc line that I had gotten put in before I started chemotherapy for my stage 2 cervical cancer (neuroendocrine carcinoma). I received a huge outpouring of support from this awesome community.

This is me, Jenny, about 8 months before my diagnosis, and before my whole world would change.

The ridiculous routine I put up with in order to shower with my picc line. Towel, tape, saran wrap, more tape, and a rubber shower cover (JUST IN CASE!)

I had a lot of support, from family, friends, coworkers...even when I wasn't asking for help, help seemed to find me. Going through treatment is hard, asking for help is really hard, luckily I had people checking in on me all the time.

That dreaded inevitable. I was shocked at how fast I was losing hair. Within 4 days of losing my hair, I was fed up with having to clean and vacuum hair from everywhere, and my friend came over to give me a shave. We put on some stand up comedy, joked around, and went for it. To be honest, it's a blessing in disguise. I was so exhausted, I can't imagine washing and trying to style my hair. I could spend maybe 5min in a hot shower and then I'd have to go lay down.

Didn't look or feel too bad :)

Then 25 days straight (excluding weekends) of external beam radiation started after my 1st round of chemo. My bladder had to be almost bursting before I could receive the radiation. Not fun. Mostly you just lie there for 10minutes, trying not to think of how much you have to pee and focus on whatever radio station they put on that day. When they tell you to wash the area with mild soap and use aveeno lotion twice a day, do it! I got through my treatment without any skin damage. (Except a new large freckle beside my belly button)

When you can, you eat. You eat as much as you can. I wolfed down this burger and chips in probably 5minutes. I lost my appetite and am still struggling with eating certain foods (I can barely stomach meat now). Even with all the anti-nausea meds and steroids, it was really hard to eat something substantial during chemo weeks.

During that time, I also had to say goodbye to my sweetest girl, Cleo. She was my cat of 18 years. I miss her very much.

Me with a little fuzz. I didn't lose all my hair, but this is what was left.

Right before my last round of chemo and my 2nd round of brachytherapy, I developed an allergy to the adhesive used on the tegaderm patch that was covering my picc line. That picc line was a blessing, as the following times that they had to find veins for an IV were a nightmare.

That glorious day, when I got to ring the bell! Chemotherapy done! All that was left was to finish brachytherapy!

But wait...a follow up CT showed a pulmonary embolism in the back right side of my lungs. I most likely developed deep vein thrombosis (clot in the leg), that broke off and travelled up through my heart and into an artery in my lungs. I am extremely fortunate to have had that follow up CT. I brushed off my lung issues as something residual from chemo. Even a slow paced walk, felt like running with pneumonia. I am very fortunate indeed. I will be on blood thinners till December. Huzzah....

One month on blood thinners, two months after treatment, and I'm back at the gym, trying to regain some strength and energy. I'm also back to work part time (kindergarten teacher). It's exhausting, but I'm giving it my best.

Me, today. A recent mri shows basically a complete reduction in the tumor, most likely without residual cells. My case was presented to the tumor board to weigh the risk/benefit of surgery (hysterectomy), but until then...FUCK CANCER!! :)

Congrats. Keep kicking butt and keep your head up! You're awesome +1 to you, dudette.

8 years ago | Likes 98 Dislikes 2

Three years past removal of cancerous prostate here. Proud of you, you went through a lot. Be well. Fuck cancer!

8 years ago | Likes 4 Dislikes 1

I have Cystic Fibrosis, and I have to get a picc every year or two, so trust me, I get it. And I’m sorry you had to go through that

8 years ago | Likes 8 Dislikes 0

Good job! Don't EVER give up. Going through stage 4 kidney cancer with my mother in law, it is horrible. So proud of you for staying strong

8 years ago | Likes 8 Dislikes 1

Great news! You're a warrior, I couldn't imagine what you have had to endure! You're awesome!

8 years ago | Likes 135 Dislikes 1

Had an emergency hysterectomy last year: it saved my life and while it changed my life plans, I'm glad that I'm alive.

8 years ago | Likes 6 Dislikes 0

I was told I'm in complete remission on the 31st of August. Can't wait for my year mark and many more after. FUCK CANCER!!

8 years ago | Likes 26 Dislikes 1

Win at all costs. Fight dirty. Kick it when it's down. Cancer doesn't play fair, so you don't either. I said goodbye to my sister in Oct.

8 years ago | Likes 6 Dislikes 0

Thank you for sharing and for being honest about your treatment, picc line, hair loss. You are amazing. Stay strong. Stay positive.

8 years ago | Likes 3 Dislikes 0

I just finished with treatmemt of my stage 1 aednocarcenoma.. you've got this girl!

8 years ago | Likes 5 Dislikes 0

@op good job! Fuzzy head was an interesting look, glad you’ve got hair back. FUCK CANCER! v

8 years ago | Likes 4 Dislikes 0

I definitely don't miss the fuzz haha

8 years ago | Likes 3 Dislikes 0

You were rocking the shaved head look tho

8 years ago | Likes 3 Dislikes 0

I wish you all my best!

8 years ago | Likes 132 Dislikes 0

From a fellow survivor.....fuck picc lines

8 years ago | Likes 3 Dislikes 0

Cancer survivor '05. I can still taste the saline they put in my port each time before and after chemo. Use to physically gag at the thought

8 years ago | Likes 5 Dislikes 1

Testicular cancer survivor myself. Fuck cancer! Glad things are working out.

8 years ago | Likes 8 Dislikes 1

Fuck cancer. You are a badass, and an inspiration to those fighting.

8 years ago | Likes 5 Dislikes 1

To protect the pic line from water, use those free bags for holding wet umbrellas. They're perfect to slip over your arm, then tape down.

8 years ago | Likes 6 Dislikes 0

Big stores have them at their entrance. The smaller-sized ones work best, tho harder to find. Just cut to fit. Good luck on your journey!

8 years ago | Likes 3 Dislikes 0

My dad lost his fight recently.

8 years ago | Likes 45 Dislikes 1

He didn't lose the fight to cancer, he decided to take the ugly bastard with him. I'm sorry for ur loss :(

8 years ago | Likes 5 Dislikes 0

Very sorry to hear that. Fuck cancer.

8 years ago | Likes 18 Dislikes 0

so sorry for your loss

8 years ago | Likes 12 Dislikes 0

You go girl!!

8 years ago | Likes 4 Dislikes 0

Your smile and attitude are kick-ass!!

8 years ago | Likes 14 Dislikes 1

You look beautiful :)

8 years ago | Likes 4 Dislikes 0

Adenoid cystic carcinoma of the saliva glands here. Post surgery about to start radiation. You go girl! We can do it!

8 years ago | Likes 10 Dislikes 0

I love your smile OP, good luck! Fatherinlaw beat lymphoma in spring, came back with vengeance in his brain, he’s fighting but he’s tired.

8 years ago | Likes 10 Dislikes 0

8 years ago | Likes 2 Dislikes 0

8 years ago | Likes 4 Dislikes 0

After watching my mother, aunt, and grandmother fight the good fight and lose, and as I now watch my mother-in-law fight that same fight,(1)

8 years ago | Likes 3 Dislikes 0

(2) you give me hope, OP

8 years ago | Likes 3 Dislikes 0

Stage 4 breast cancer metastasized to my iliac crest, as a surgical tech, it's harder to see, realize, and live through these eyes. Age 32.

8 years ago | Likes 16 Dislikes 0

you learn fast, as a mom of 4, this is "My new normal". Way to go, being amazing. I always have a smile for everyone but inside............

8 years ago | Likes 10 Dislikes 0

It's a whole other story. But, the one thing I've learned, not matter who or what you are to someone l, "there's more than you're own life..

8 years ago | Likes 9 Dislikes 0

"To live for" .......always. take care and drink a shit ton of water constantly. You are beautiful.

8 years ago | Likes 9 Dislikes 0