there was a girl with a degenerative muscle issue who as bed ridden and would post occasionally, I think she was in Australia. I haven't seen an update in a while, does anyone know who I'm referring to? how is she doing?
Everytime I see the X I still think it's going to be an completely different post.... Like she is dressed up like a house so a storybook porn is about to start lol
Are you actually being serious or is this a poor attempt at a joke? Because if the former, I'm wondering what constitutes an acceptable level of illness in your mind and who decided it was your clown-ass who gets to make that call.
I'm replying to you as if this was a serious comment. Chronic Fatigue Syndrome is a very misleading name for this illness that causes people to vastly underestimate it's seriousness. Here is a short health update on Diannas channel from 8 months ago that gives an inside into how severe CFS looks like. I hope you check it out: https://youtu.be/vydgkCCXbTA
It is apparently suppressing the immune system and allowing other diseases in. It also destroys your bodies memory cells of old diseases you had naturally recovered from and prevents your body ever remaking them.
Long COVID sucks. It felt like a regular cold for the week I had COVID in April last year, but resulted in me being driven from work in an ambulance a few weeks later barely able to breathe. Had triggered pericarditis (fluid surrounding heart) and costochondritis (inflammation between each rib) and I'm still barely able to do one shift a week to this day from pain :(
Take it easy, it is unfortunately a long road, and you will likely have colds and flus hit harder and last 5x as long as everyone else from now on... stock up on chicken soup.
It gave me anemia so severe I was shivering cold in 95F and I didn't realize it for months until my spouse pointed it out. Long covid took me around 5 months to recover from. Another guy I know took almost a year to recover and was debilitated. Couldn't work, could barely eat.
My buddy was going through long Covid. Then had to fight colon cancer. Won. And now found out he has a growth in his lungs. Dude is not catching a break. As a journalist, working from home is an option. But that's still a lot of bullshit to go through just because 40% of the population think they're too special to get vaccinated.
And the ones who were already vulnerable and had to shield, are coming up on 4 years being stuck at home even though we now have adequate protections that could make it safe enough for them to live in society, if only society cared. But now not even medical providers will mask up let alone ventilate rooms, so those people have to risk their lives just to get basic healthcare, let alone anything else like get groceries, use public transport, etc.
The clue is in the name … 9 months is realistically not all that long, in the chronic illness world. There are people with Long Covid triggered from the start of the pandemic. And they're all still relatively new in the world of ME (which is basically what she has now).
I am one of those, 2 years of it, 1 with cripplingly bad oxygen intake. Experts agreed, they have no idea what to do, but expect research and treatments in 5-15 years from now.
Have a friend from high school that's been staying with it for almost as long. Watching everyone in my family act like it was no big deal after that and watching my fairly healthy uncle tank in under a week was brutal and sobering.
Same, a friend of mine is still fairly crippled by it since March 2020. Can’t work, constant exhaustion and fatigue, fevers 100+ weekly. It’s miserable.
yup, I got it when it first came to Australia, still dealing with the fatigue, I can fight through it for a while but then I'm wrecked for days after, also the hot flushes all the time are a PITA although the constant brain fog is the biggest issue
Ya. A lot of people are dealing with this Covid’s mortality rate is about 1% but since its infection rate is so high that made it a big problem. But the problem no one seems to talk about is how many didn’t die but their lives were permanently altered by it
This is one thing that drove me crazy during the pandemic with the economy > lives people. Having even a small chunk of the population permanently disabled is going to cost fucking heaps
If you're being series then yeah you probably do have 'long' something. Almost everyone I know in the ME/CFS community got it from a virus, one even from 'just' the flu (21 at the time, 13 years ago).
Oof, welcome to the suck club. Been "enjoying" it for like 13 years or something by now. The bright side is that thanks to COVID we're finally seeing more research into CFS/ME.
The threat of humanity actively destroying itself with nukes pales in comparison to the threat of humanity passively destroying itself with climate change. Frankly, I expect that in 100 years we'll have seen billions die because of it.
What kind of world my children will inherit is the shit that keeps me up at night. Between my heart condition and my age, I’m safe from a draft. In 13 years my son won’t be…
they are STILL learning new side effects of long covid, i just saw a post about how it caused a gradeshcool girl to develop partial alopecia. big chunks of her hair just fell out and stopped growing.
Sorry for your downvotes, that's a valid concern (particularly for this far unheard-of side effects) an the true reason the list of possible long covid symptoms is so long. That list will shrink over time with research, though at this point it's safe to say it won't shrink down to nothing.
The main suspicion is that Covid rewrites your immune system memory, and sometimes permanently suppresses it from learning new diseases. So people keep getting literally the same cold over and over and can never recover from it, ever thanks to covid borking their immune memory for that one particular virus.
DippinDerps
Glad to see her smiling! Seems like she is slowly getting better. power though it PG!
Gen1Optimus
I, too, use a model house to hide my erections
Boatsntoes
Step one, get a box.
dreyfusslugado
OMG I love it!
Mortbise
Bet she could use a shot of Scumble.
rubydust
She could stand to see granny weatherwax.
SugaryBonemeal
It's made of apples. Well....mostly apples.
PeebRow
there was a girl with a degenerative muscle issue who as bed ridden and would post occasionally, I think she was in Australia. I haven't seen an update in a while, does anyone know who I'm referring to? how is she doing?
kmikl
Last I recall she was looking to come to Canada for MAiD.
WarmeChocolademelk
She’s active on instagram: http://www.instagram.com/hollywiththemd
boardfuniguess
Everytime I see the X I still think it's going to be an completely different post.... Like she is dressed up like a house so a storybook porn is about to start lol
sandwiched
Every time I see the X.com I think "Sectoids!!"
Treforce
Every time I see the x I think "if I click the x, does the website close?"
RunsWithBullShit
I was thinking it was going to be a foot fetish video.
boardfuniguess
Haha yeah I didn't think about that
irrationalcompromise365
Every time I see it, I audibly sigh with disappointment that whomever it is still uses that fascist cesspool of a site.
HedonistBeard
They've only lost about 5% of their users, so... sadly most people.
dasklaus
Now, how many of their *active* users? Because I still haven't deleted the accounts I haven't used in years.
HedonistBeard
Good point, but then a lot of people went and deleted their inactive accounts when this happened just to make a stand so it might even out.
Zuegma197777
I'm like get yr ass up. There's people worst and they out n about.
Kamchatkah
Are you actually being serious or is this a poor attempt at a joke? Because if the former, I'm wondering what constitutes an acceptable level of illness in your mind and who decided it was your clown-ass who gets to make that call.
thedarknesssurroundsme
I'm replying to you as if this was a serious comment. Chronic Fatigue Syndrome is a very misleading name for this illness that causes people to vastly underestimate it's seriousness. Here is a short health update on Diannas channel from 8 months ago that gives an inside into how severe CFS looks like. I hope you check it out: https://youtu.be/vydgkCCXbTA
Fishy820
So she had had long COVID for 9 months?!
Picdump2508
My buddy has been suffering from long COVID since November of 2019.
psugab
It's pretty long
Ghlargh
Covid is really weird, it seems to have 20 times more symptoms and after-effects than any other disease.
SirenBrick
It is apparently suppressing the immune system and allowing other diseases in. It also destroys your bodies memory cells of old diseases you had naturally recovered from and prevents your body ever remaking them.
UserMCP
Yup. Still bedbound, too. It's pretty awful.'
heshallbepankekthesnek
Long COVID sucks. It felt like a regular cold for the week I had COVID in April last year, but resulted in me being driven from work in an ambulance a few weeks later barely able to breathe. Had triggered pericarditis (fluid surrounding heart) and costochondritis (inflammation between each rib) and I'm still barely able to do one shift a week to this day from pain :(
SirenBrick
Take it easy, it is unfortunately a long road, and you will likely have colds and flus hit harder and last 5x as long as everyone else from now on... stock up on chicken soup.
soulmata
It gave me anemia so severe I was shivering cold in 95F and I didn't realize it for months until my spouse pointed it out. Long covid took me around 5 months to recover from. Another guy I know took almost a year to recover and was debilitated. Couldn't work, could barely eat.
VaultGirl69
My buddy was going through long Covid. Then had to fight colon cancer. Won. And now found out he has a growth in his lungs. Dude is not catching a break. As a journalist, working from home is an option. But that's still a lot of bullshit to go through just because 40% of the population think they're too special to get vaccinated.
rooik14
Yep, the pandemic is far from over, and for some people it may be years if not more until they can get a semblance of their normal life back.
RunawaySpoons
And the ones who were already vulnerable and had to shield, are coming up on 4 years being stuck at home even though we now have adequate protections that could make it safe enough for them to live in society, if only society cared. But now not even medical providers will mask up let alone ventilate rooms, so those people have to risk their lives just to get basic healthcare, let alone anything else like get groceries, use public transport, etc.
RunawaySpoons
The clue is in the name … 9 months is realistically not all that long, in the chronic illness world. There are people with Long Covid triggered from the start of the pandemic. And they're all still relatively new in the world of ME (which is basically what she has now).
RunawaySpoons
[Also just to clarify she's had Long Covid since before January, but January is when she became bedbound from it.]
SirenBrick
I am one of those, 2 years of it, 1 with cripplingly bad oxygen intake. Experts agreed, they have no idea what to do, but expect research and treatments in 5-15 years from now.
florpglorp
The US is doing a really doing a good job ignoring all the healthcare issues
DeanOMiite
Friend of mine has been dealing with the effects for like two years
SaganIsMyLordAndSavior
Have a friend from high school that's been staying with it for almost as long. Watching everyone in my family act like it was no big deal after that and watching my fairly healthy uncle tank in under a week was brutal and sobering.
BrainTaffy
Same, a friend of mine is still fairly crippled by it since March 2020. Can’t work, constant exhaustion and fatigue, fevers 100+ weekly. It’s miserable.
SirenBrick
I am the same, 2 years and counting. Finally got in to a clinic after waiting on a list this whole time.
shadowrunner03
yup, I got it when it first came to Australia, still dealing with the fatigue, I can fight through it for a while but then I'm wrecked for days after, also the hot flushes all the time are a PITA although the constant brain fog is the biggest issue
buttcreambandit
Ya. A lot of people are dealing with this Covid’s mortality rate is about 1% but since its infection rate is so high that made it a big problem. But the problem no one seems to talk about is how many didn’t die but their lives were permanently altered by it
Anfalicious
This is one thing that drove me crazy during the pandemic with the economy > lives people. Having even a small chunk of the population permanently disabled is going to cost fucking heaps
InkyBlinkyPinkyAndClyde
This is why my family still wears masks. But no one else seems to give a single duck anymore.
kmikl
The fact that people got infected multiple times and had progressively more damage done is the issue.
kmikl
well... *an issue
Merky600
It triggered Chronic Fatigue Syndrome. That's the kicker.
TexMexHex
Well shit. I must have gotten long covid 30 years ago.
RunawaySpoons
If you're being series then yeah you probably do have 'long' something. Almost everyone I know in the ME/CFS community got it from a virus, one even from 'just' the flu (21 at the time, 13 years ago).
TexMexHex
No. Just making a dark joke about the overall malaise and apathy.
SugaryBonemeal
Oof, welcome to the suck club. Been "enjoying" it for like 13 years or something by now. The bright side is that thanks to COVID we're finally seeing more research into CFS/ME.
HoneyBunchesOfStoats
yeah, one of the few bright sides of covid is that it's sparked a lot of much needed research on post-viral syndromes
guavahunter
yeah my sisters finally seeing meaningful progress two years later, thats stuffs no joke! great costume though :)
Mechwarrior719
If we somehow avoid bombing ourselves into the fossil record, COVID and the early 21st century will be an interesting history lesson.
Session10
The threat of humanity actively destroying itself with nukes pales in comparison to the threat of humanity passively destroying itself with climate change. Frankly, I expect that in 100 years we'll have seen billions die because of it.
SecondSince
Yup! We are going to see the start of things becoming absolutely terrible. The ones after us will suffer the most though...
Mechwarrior719
What kind of world my children will inherit is the shit that keeps me up at night. Between my heart condition and my age, I’m safe from a draft. In 13 years my son won’t be…
gorillaClutch
they are STILL learning new side effects of long covid, i just saw a post about how it caused a gradeshcool girl to develop partial alopecia. big chunks of her hair just fell out and stopped growing.
anonymous
All because people refused to wear a simple mask and get jabbed with a needle when it mattered the most. It's pathetic and upsetting
MrsHowVeryDareYou
I wonder what symptoms are Long Covid and what are “fuck if we know, just lump it in”
dasklaus
Sorry for your downvotes, that's a valid concern (particularly for this far unheard-of side effects) an the true reason the list of possible long covid symptoms is so long. That list will shrink over time with research, though at this point it's safe to say it won't shrink down to nothing.
SirenBrick
The main suspicion is that Covid rewrites your immune system memory, and sometimes permanently suppresses it from learning new diseases. So people keep getting literally the same cold over and over and can never recover from it, ever thanks to covid borking their immune memory for that one particular virus.